Tamar Heller, PhD

Professor and Head, Disability and Human Development

Dr. Heller is professor and head of the UIC Department of Disability and Human Development and directs its University Center of Excellence in Developmental Disabilities for the State of Illinois. She also directs the Rehabilitation Research and Training Center on Developmental Disabilities and Health, the Institute’s Family Clinics, and the TAP autism training program. She has active projects on family support and health promotion interventions for individuals with disabilities.

Dr. Heller has written over 200 publications and presented numerous papers at major conferences on family support interventions and policies, self-determination, health promotion, and aging of people with disabilities. She has written or co-edited five books and has edited special issues of Technology and Disability, American Journal on Intellectual and Developmental Disabilities, Journal of Policy and Practice in Intellectual Disabilities, and Family Relations. She is the past president of the board of the Association of University Centers on Disabilities. In 2005 she was Senator Obama’s delegate to the White House Conference on Aging. She is co-founder of the national Sibling Leadership Network and a member of its executive board.

Her awards include the 2009 Autism Ally for Public Policy Award of The Arc/The Autism Program of Illinois; the 2008 Lifetime Research Achievement Award, International Association for the Scientific Study of Intellectual Disabilities, Special Interest Group on Aging and Intellectual Disabilities; the 2009 Community Partner Award of Community Support Services, the 2010 Outstanding Researcher Award in the UIC College of Applied Health Sciences, and the 2012 International Award of the Association of University Centers on Disabilities.

For more information about Dr. Heller, please see her faculty page.

Research Interests

Dr. Heller studies lifespan transitions faced by individuals with a disability and their families. As Director of the Rehabilitation Research and Training Center on Aging with Developmental Disabilities: Lifespan Health and Function, Dr. Heller oversees a comprehensive research program focusing on: 1) health and wellness, 2) later life family caregiving, and 3) public policy and programmatic interventions to improve the life of adults with developmental disabilities as they age. She also directs projects studying the impact of family support and health promotion interventions on adults with disabilities and their families. Her current research also includes evaluations of integrated care/managed care programs and closures of developmental centers, and evaluations of self-directed and family support programs.

Recent and Noteworthy Publications

Yamaki K, Wing C, Mitchell D, Owen R, Heller T. The Impact of Medicaid Managed Care on Health Service Utilization Among Adults With Intellectual and Developmental Disabilities. Intellect Dev Disabil. 2019 Aug;57(4):289-306. doi: 10.1352/1934-9556-57.4.289.

Spassiani NA, Meisner BA, Abou Chacra MS, Heller T, Hammel J. What is and isn't working: Factors involved in sustaining community-based health and participation initiatives for people ageing with intellectual and developmental disabilities. J Appl Res Intellect Disabil. 2019 Nov;32(6):1465-1477. doi: 10.1111/jar.12640.

Crabb C, Owen R, Stober K, Heller T. Longitudinal appraisals of family caregiving for people with disabilities enrolled in Medicaid managed care. Disabil Rehabil. 2019 Jan 29:1-8. doi: 10.1080/09638288.2018.1557266.

Yamaki K, Wing C, Mitchell D, Owen R, Heller T. Health Service Utilization and State Costs Among Adults Aging With Early-Acquired Physical Disabilities in Medicaid Managed Care. J Aging Health. 2019 Dec;31(10_suppl):97S-123S. doi: 10.1177/0898264318808192.

Xiang X, Owen R, Langi FLFG, Yamaki K, Mitchell D, Heller T, et al. Impacts of an Integrated Medicaid Managed Care Program for Adults with Behavioral Health Conditions: The Experience of Illinois. Adm Policy Ment Health. 2019 Jan;46(1):44-53. doi: 10.1007/s10488-018-0892-8.

Hsieh K, Hilgenkamp TIM, Murthy S, Heller T, Rimmer JH. Low Levels of Physical Activity and Sedentary Behavior in Adults with Intellectual Disabilities. Int J Environ Res Public Health. 2017 Dec 4;14(12). pii: E1503. doi: 10.3390/ijerph14121503.

Heller T, Owen R, Bowers A, Gibbons HM. Aging With a Physical Disability in Medicaid Managed Care. Res Aging. 2017 Jul;39(6):778-798. doi: 10.1177/0164027516681049.
Burke MM, Heller T. Disparities in Unmet Service Needs Among Adults with Intellectual and Other Developmental Disabilities. J Appl Res Intellect Disabil. 2017 Sep;30(5):898-910. doi: 10.1111/jar.12282.

Burke M, Heller T. Individual, parent and social-environmental correlates of caregiving experiences among parents of adults with autism spectrum disorder. J Intellect Disabil Res. 2016 May;60(5):401-11. doi: 10.1111/jir.12271.

Yamaki K, Hsieh K, Heller T. Health profile of aging family caregivers supporting adults with intellectual and developmental disabilities at home. Intellect Dev Disabil. 2009 Dec;47(6):425-35.

For a few more of Dr. Heller's publications, see this PubMed selection.